Missed You All!
Thanks to Betsy for finding me on Facebook and getting me to back in the CoH "mindset." I've been reading through some of the archives and feel simultaneously honored, humbled, and embarrassed to find...
View ArticleThe Chiari Institue in Wisconsin
new site : http://www.wichiariinst.o...Page.asp?PageID=OTH000032
View ArticleInstalling a Husband
Hello People - Hope everyone is doing well! God only knows what I would do without my husband (he's definately my better-half), but I thought this was pretty darn funny..Hope you like it! Sparky For...
View ArticleI'll See Your Tonsils and Raise You a Foot
I guess I should be relieved it's just tonsils I have hanging out in my skull? I bet a foot could 'cause one heck of a headache. What a kick. (Sorry)....
View Articlehome makeover
Hey gang, did anyone see the Home Makeover show last night, it was about a family who had 2 daughters with SMA and Dad and son who had chrone's disease. I've never heard of SMA (loss of muscle...
View ArticleOff To TCI
Hi Everyone, We have our appointment with tci on tuesday and will be having the cine done in NY on monday. All the other imaging was done here and we are leaving for tci in a few hours. Hopfully they...
View ArticleBack from TCI
Hi everyone, We got back from TCI wednesday night, very long trip and NY is very expensive, no sight seeing to busy with Drs. Dr B said she definatly has a tethered cord and went through her mris and...
View ArticleMelanie
Melanie, Shoot me an e-mail Lisa_Stringer@ColumnofHope.org or post here to let me know how you are doing.
View ArticleCongratulations, Mark (and Barbara!)
Just wanted to congratulate Mark (and Barbara, and the entire Kane support team--it sounds like you have a pretty amazing community of people) on surviving another tax season! (Unless it goes by PST...
View ArticleObservations From the Road
The trip home was fun. This is the second time I've done it now. But since Whitney was driving, I got to see a lot more of what was going on. Just some quick observations. Dallas looks like one, huge...
View Articlesurgery update
Hi everyone, I know i dont post much but you all have been very helpfull over the years and i want to let you all know the good news. Heidi had surgery on the 2nd for tethered cord or OTC or whatever....
View ArticleAt long last--the addition is finished
You all listened to me whine these last 2.5 years about our project and how it will never get done. It is done, just waiting for Owen to feel well enough to start packing. I am going to try to post...
View ArticleHow is everyone?
Hi, I hope everyone is enjoying the end of their summer. I just wanted to see if we can get updates on what people are up to. We know Barbara is hard at work recovering from surgery and is back behing...
View ArticleIt's that time again! Day Without Pain Biograhies
Good Evening! As you know, the 2009 Working Toward a Day without Pain is coming upon us quickly (10/17/09)! That means it is time to update the biography PowerPoint and framed biographies. The framed...
View ArticleHappy Thanksgiving!
I just wanted to wish everyone a Happy Thanksgiving! I know when we don't feel well it is hard to be thankful but remember it is the little things that truly matter like friends, family and the...
View ArticleShop & Travel to Benefit Column of Hope!
When you click on the iGive.com button below, you can download the toolbar (you can shop on the site without downloading the toolbar) for even easier on-line shopping to benefit Column of Hope. The...
View ArticleSarah in Paradise
Her daughter passes away http://www.asap.org/forum/viewtopic.php?f=2&t=10799
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